Local MP, Chloe Smith, is knot a-frayed to raise awareness of terminal disease

Chloe Smith MP laced up to show support for people affected by a terminal disease at the parliamentary launch of a charity’s innovative awareness campaign.

The MP for Norwich North attended the Progressive Supranuclear Palsy Association (PSPA’s) Ed’s Lace launch on March 24, where she met Linda Moore, a local supporter of the charity.

PSP is a progressive neurological condition which over time cause problems with swallowing, slurred speech, recurrent falls, irritability and apathy, slowness of response and severe difficulties walking.

 

The average life expectancy is around seven years from the onset of symptoms.

 

Ed’s Lace is a shoe lace in the PSPA’s corporate colour, but with one end cut to enable the lace to fray. The frayed end depicts the progressive nature of the disease.

 

PSPA’s Director of Development, Cameron Wood, said: “We were delighted Chloe Smith attended our parliamentary reception to meet people living with the disease, their families and our supporters.

 

“Our innovative Ed’s Lace campaign will raise much-needed awareness of PSP while generating funds to support our charity’s work.

“It also aims to educate health and social care professionals as we call for more timely diagnosis of the condition, leading to better coordinated care.”

Ed’s Lace will be the focus for this year’s PSP Awareness Week from 18-26 April.

 

PSPA will be selling Ed’s Laces around the UK and encouraging people to wear a lace in their running shoes, tied around their wrist, in their hair, on their belt - anywhere they can think of to show their support.

 

To find out more about the PSP Association and its Ed’s Lace campaign visit www.pspassociation.org.uk